The National PNH Service
The National PNH Service is a world-renowned UK-based service, with expertise in managing patients with paroxysmal nocturnal haemoglobinurea (PNH). The Service provides education to further the knowledge of diagnosis and management of PNH, with the aim to improve patient care worldwide.1
The National PNH Service consists of two centres in England: the centre based at King’s College Hospital, London, manages patients in London and the Home Counties, and the centre at St James’s University Hospital, Leeds, manages patients from the rest of the United Kingdom.2
PNH Dedicated Centres
Leeds Teaching Hospitals
Leeds Teaching Hospitals catchment area
King’s College Hospital
King’s College Hospital catchment area
PNH Scotland Outreach
Lanarkshire Monklands Hospital
PNH Outreach Clinics
Royal Liverpool University Hospital
Manchester Royal Infirmary
Birmingham Queen Elizabeth Hospital
Peterborough City Hospital
Oxford Churchill Hospital
Bristol Southmead Hospital
Southampton Central Hospital
Referrals to the PNH Service
All patients who have PNH cells detected in their blood should be referred to the PNH Service. Patients seen within the Service are managed as part of a shared care arrangement between the PNH Service and their local haematologists, who will jointly decide a treatment plan.3
If you are a medical professional and you would like to refer someone to the National PNH Service, please contact one of the two designated National PNH Service Centres listed below depending on your geographical location.
Patients referred to the National PNH Service will have the choice of being seen either at the next most appropriate Outreach Clinic or at the appropriate National PNH Service Centre (St James’s Hospital, Leeds or King’s College Hospital, London) depending on where they live and the urgency required.
The two National PNH Service centres work very closely together to ensure a consistent approach to patient management throughout the UK and equal access to therapy.
Leeds
For referrals to the National PNH Service at St James’s Hospital, Leeds, please address correspondence to:
St James’s Hospital, Leeds
Level 3, Bexley Wing
St James’s University Hospital
Beckett Street
Leeds LS9 7TF
Tel: 0113 2068625
Fax: 0113 2068177
Email: [email protected]
King’s College
For referrals to the National Service at King’s College Hospital, please address correspondence to:
Dr A. Kulasekararaj or Dr S. Gandhi
King’s College Hospital, London
Department of Haematology
Hambleden Wing
Denmark Hill
London SE5 9RS
Tel: 0203 2993520
Fax: 0203 2994689
Email: [email protected]
Visit The National PNH Service for more information: https://pnhserviceuk.co.uk/
References
National PNH Service (2024). PNH Service Home. https://pnhserviceuk.co.uk/. [Accessed October 2024].
National PNH Service (2024). The National PNH Service. https://pnhserviceuk.co.uk/healthcare-professionals/the-national-pnh-ser.... [Accessed October 2024].
National PNH Service (2024). Referral information. https://pnhserviceuk.co.uk/healthcare-professionals/referral-information/. [Accessed October 2024].
UK | October 2024 | FA-11214738
Adverse events should be reported. Reporting forms and information can be found at www.mhra.gov.uk/yellowcard. Adverse events should also be reported to Novartis online through the pharmacovigilance intake (PVI) tool at www.novartis.com/report, or alternatively email [email protected] or call 01276 698370.
