This page is specifically intended to support UK patients who have been prescribed Jakavi® (ruxolitinib) by a UK healthcare provider.
If you have any questions about your medication, ask your doctor, nurse or pharmacist and read the patient information leaflet (PIL) provided with your medicine.
These resources do not replace the PIL that comes with your medication. The PIL contains additional important information on the use of this medicine that is not fully covered in these resources. Always read the PIL for full information.
Patient resources
Carry this card around with you whilst on your Jakavi® treatment
Medication Alert Card
Medication Alert Card
This card lets people know the medicine you are being treated with and highlights the very common and common side effects of treatment.
There are spaces to fill out your details and those of your healthcare provider.
Would you like to know more about your Jakavi® treatment?
Your guide to the essentials
Starting an unfamiliar treatment can be a bit daunting, so we've developed these guides to help you understand more about your condition and treatment.
They include information about myelofibrosis, polycythaemia vera, treatment with Jakavi®, monitoring symptoms, and the support that is available to you. These guides are intended for GB patients only.
Would you like some help understanding the jargon of myeloproliferative neoplasms (MPNs)?
Understanding MPNs
Understanding MPNs
This guide gives you a quick overview about MPNs, including common symptoms, treatment options, and what monitoring of your MPN might look like.
Would you like to learn more about myelofibrosis?
Living with myelofibrosis – your simple Symptom Guide
Living with myelofibrosis – your simple Symptom Guide
This guide has been developed with you in mind to help you understand your condition better. Here you can read an introduction to myelofibrosis and have a more detailed look at the main symptoms that come with it.
You can also find information on resources that could help you keep track of your symptoms. Having a record of your symptoms can help both you and your doctor understand what’s going on, so your doctor can better support you.
Learn about the impact of spleen changes
MPN animation for spleen symptoms
This video has been developed to help support you with myeloproliferative neoplasms. This short animation explains some of the spleen-related symptoms to look out for.
Speaking to your doctor about how you’re feeling can help them monitor how you’re doing and discuss the options that are available to help you.
Learn how to track your symptoms
A guide for MPN patients – tracking your symptoms with Professor Claire Harrison
Join Professor Claire Harrison in this short video where she highlights the 10 key symptoms you should look out for, also known as the MPN10.
Detailed in this video are resources that you can use to track your symptoms, enabling you to map how they change over time with different treatments and interventions.
It’s important to monitor your symptoms regularly, and share this information with your doctor and nurse
Different tools are available to help track your symptoms. Your record can help you to identify any changes in your health and support your conversations with your healthcare professional.
Know your score – MPN 10 booklet
Know your score – MPN 10 booklet
This booklet has been specifically designed to help you keep track of your MPN symptoms so you can record how they are affecting you over time.
MPN Tracker tools
MPN Tracker tools
These online tools enable people with myelofibrosis (MF), polycythaemia vera (PV), or essential thrombocythaemia (ET) to track their symptoms on a regular basis.
UK | November 2024 | FA-11208761
Reporting side-effects
If you get side-effects with any medication you are taking, talk to your doctor, pharmacist or nurse. This includes any possible side-effects not listed in the information leaflet that comes in the pack. You can report side-effects via the Yellow Card Scheme at www.mhra.gov.uk/yellowcard.
By reporting side-effects you can help provide more information on the safety of your medication.
